Key points about palliative care for children in NZ
- palliative care means relieving or soothing
- palliative care can be available to tamariki with a chronic illness, or to tamariki with a serious illness who recover, as well as to tamariki who are dying
- palliative care and curative care is available for tamariki and rangatahi (young people) with all kinds of illnesses
- palliative care provides hope and aims for the best quality of life for tamariki and whānau during stressful times
This page is part of a whole section on palliative care.
What is palliative care?
Palliative care for tamariki and young rangatahi focuses on comfort and quality of life for the child and support for the whole whānau.
The aim of palliative care is to provide hope and achieve the best quality of life for your child and whānau during stressful times.
Palliative care can be provided to tamariki with serious illness, of all ages, from premature babies to older teens. Palliative care can also be provided to whānau before their baby is born when the baby has been diagnosed with a serious illness.
Goals of palliative care
The goal of those working with you, your child and whānau is to:
- help your child to be comfortable and in the best possible condition so that they can go about doing things that are important to them, and that they enjoy (such as going to school or kindergarten)
- help your whānau with difficult decisions
- support you as the parents or caregivers
- help you to support your child around any worries or questions they might have
- help you to support the brothers and sisters of your sick child
- provide practical help with equipment, medicine and respite care
- help your whānau to access support in bereavement
Palliative care does not mean giving up
Sometimes it is difficult to know what the outcome of a serious illness might be. Tamariki and parents may find themselves in the difficult position of having to decide whether or not to pursue treatments that offer a small chance of a cure. It is possible to go ahead with such treatments and still receive palliative care. In this way, whānau can 'hope for the best but prepare for everything else'.
Acknowledgements
The content on this page has been developed and approved by the New Zealand Paediatric Palliative Care Clinical Network, Paediatric Society of New Zealand.
