Listing Of Information, Support & Resources On Cerebral Palsy
Listing Of Information, Support & Resources On Cerebral Palsy
A listing of organisations, resources and support available for parents, family and whānau of children and young people with cerebral palsy.
About cerebral palsy - general information
Cerebral palsy information (Cerebral Palsy Society)
Information about the types of cerebral palsy (CP), the effects of CP, treatments, assessments, outcomes and research.
Cerebral palsy information (KidsHealth NZ website)
Information about CP including how CP is classified, management of CP, treatments and disability support.
Cerebral palsy information (Cerebral Palsy Alliance, NSW, Australia)
A range of information about CP. Please be aware that the general information about CP is relevant to NZ parents and whānau but the website also provides information about services only available in Australia.
Cerebral palsy apps and online platforms
CP Channel - a free app for people with CP (Cerebral Palsy Foundation, US)
Online platform (Sameview, Australia)
An Australian pay online platform that provides one place to connect and share information between therapists, educators, support workers and families. Used by some families in New Zealand - but there is a cost.
Diagnosis of cerebral palsy and soon after
Receiving a diagnosis for your child with special needs (KidsHealth NZ)
Whenever you receive news that your child has special needs, it can be distressing and can lead you and your family to experience a range of emotions. You may feel shock, anger, denial, fear, guilt, sadness, and helplessness. This is normal. The future can be unknown and planning ahead is therefore very difficult. Remember, there are services to help when you want or need help.
When your child is diagnosed with a chronic illness or disability, coping is an ongoing process. Everybody copes in a different way. Seek support when you need it.
Cerebral palsy NZ support groups
Cerebral palsy support (Cerebral Palsy Society)
The Cerebral Palsy Society supports New Zealanders with CP at all ages and stages. It's a member-based organisation that strives to enhance the lives of people with CP in New Zealand by providing programmes, support and advice. Find out about the support the Cerebral Palsy Society offers. You can also check the Society's unique and free programmes.
Other NZ based support and assistance for your child with cerebral palsy
Needs Assessment Service Coordination (NASC) (KidsHealth NZ)
If your child has cerebral palsy, a needs assessment is the first step towards identifying what needs your child may have and what outcomes you want from the process. Service coordination is the process of working with you to explore how best to organise the support and services you need to help your child to be as independent as possible. Support to meet your child's needs may come from families and friends, community agencies and resources, or from government-funded services.
Different kinds of financial support may be available. Talk to your health professional, social worker, or NASC (Needs Assessment Service Coordination) Service about which allowances you may be able to receive.
Support, advocacy, information (CCS Disability Action)
CCS Disability Action is the largest pan-disability support and advocacy organisation in New Zealand. As well as providing direct support and advocacy, they have a wider role in shaping society's attitudes towards people with a disability.
Information, events and support (Disability Connect)
Disability Connect help individuals with a disability, or family members of a disabled person, to navigate the New Zealand disability sector. Check out their seminars, community conversations and other services.
BICT aims to empower families and whānau by providing life changing resources that will enhance the quality of life for their brain injured children.
Early intervention and rehabilitation programmes for children and adults. There are Conductive Education Centres in some parts of the North and South Islands.
Parent To Parent aims to inform, educate, inspire and support you as you navigate your way through your family's experience with disability. Their services are free and confidential.
Family Works can support children, young people and families to make positive changes in their lives using the strengths and resources they already have. Check Family Works in your region and find out about the services they provide.
Stepping Stones Triple P is for parents of a child with a disability. If the pressure of raising a child with a special need is straining your family life, Stepping Stones Triple P may help. Stepping Stones is based on Triple P's positive parenting strategies. It helps you manage problem behaviour and developmental issues common in children with disability. It also helps encourage behaviour you like, cope with stress, develop a close relationship with your child and teach your child new skills.
There are over 50 affiliated RDA groups in every region of New Zealand. RDA provides goal-based riding activities that increase the ability, strength and confidence of people with physical, intellectual, emotional and social challenges.
Living with a sibling with a disability (Parent to Parent)
Watch a 2 part video series where siblings from around New Zealand tell their stories of living with a family member with a disability. Find out about sibling support groups.
Cerebral palsy and language
Speech and language (KidsHealth NZ)
Information about typical communication development in young children and ideas for supporting them. You'll also find suggestions about what to do if you are worried about your child's communication development.
Cerebral palsy treatments
Managing cerebral palsy (KidsHealth NZ)
Read the general page on cerebral palsy to find out how cerebral palsy is managed and what other things to consider.
Selective dorsal rhizotomy (SDR) (KidsHealth NZ)
If you are thinking about SDR, read this information and talk to your local team and other Aotearoa New Zealand experts first.
Advice for parents about complementary and alternative medicine (KidsHealth NZ)
Includes suggested questions to ask before using complementary and alternative medicine.
Cerebral palsy and stem cell treatments (KidsHealth NZ)
If you are considering stem cell therapy for your child with CP, please read this information.
Cerebral palsy and hyperbaric oxygen therapy (KidsHealth NZ)
If you are considering hyperbaric oxygen therapy for your child with CP, please read this information.
Cerebral palsy education and learning support
Learning Support: What is it? (KidsHealth NZ)
Your child may need extra support if they have needs that are affecting their learning or participation in everyday life.
Learning Support before your child goes to school (KidsHealth NZ)
If your child needs extra support for learning and development, there are qualified, experienced people in early intervention services who can work with you. This support is available from birth through to when your child starts school.
Learning Support when your child's at school (KidsHealth NZ)
Most children with additional learning needs receive support from their school. But if teachers decide your child needs extra learning support, the Ministry of Education's Learning Support team can help. Staff at your child's school or early childhood education centre will coordinate extra services.
Cerebral Palsy Register
The NZCPR is a confidential research database of information about people with cerebral palsy in New Zealand. They need parents to join - find out more and check how to register.
This page last reviewed 29 September 2021.
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