The Cerebral Palsy Society NZ has captured the insights of children living with CP. They have made a video telling some of the children's individual experiences of living in the community, their dreams and aspirations.
Key points about cerebral palsy
- cerebral palsy is caused by damage to areas of the brain and has permanent effects on movement and posture
- it is the most common physical disability in childhood
- early intervention is important for providing your child with the best opportunities for development
- managing cerebral palsy involves a team approach with parents, therapists, doctors, nurses and teachers all contributing
Early intervention is important for providing your child with the best opportunities for development.
What is cerebral palsy?
Cerebral palsy is a permanent physical condition that affects movement and posture. It is caused by damage to, or lack of development in a part of the brain that controls movement. Cerebral palsy is the most common physical disability in childhood. It affects 1 in every 500 babies. Cerebral palsy is often called 'CP' for short.
It can cause a range of movement problems such as:
- limited mobility
- weakness of arms and/or legs
- stiffness or floppiness
- clumsiness or poor coordination
- difficulty starting and controlling movement and reduced smoothness (fluidity) of movements
- shakiness and poor balance
As your child grows, complications such as tightness of joints and hip problems can happen. Your child's paediatrician or orthopaedic surgeon will advise you if and when your child needs monitoring for hip or spine problems.
Managing cerebral palsy involves a team approach with parents, therapists, doctors, nurses and teachers all contributing.
How is cerebral palsy classified?
Cerebral palsy (CP) is classified by:
- The parts of the body affected.
- The types of movement patterns seen.
- The effect of the CP on your child's ability to perform tasks, such as general mobility and manipulation of objects.
The parts of the body affected
- quadriplegia - when both arms and both legs are affected - the muscles of trunk, face and mouth can also be involved
- hemiplegia - when one side of the body is affected
- diplegia - when mainly the lower limbs are affected
- monoplegia - when only one arm or leg is affected
Types of movement patterns seen
Many children have a mixture of the following movement patterns:
Spastic CP
This is the most common type of CP. The muscles are spastic or stiff because the damaged parts of the brain sends scrambled messages to the muscles.
Dyskinetic CP
When there are abnormal involuntary movements or postures such as dystonia (frequent twisting or repetitive movements, or abnormal postures) and athetosis (uncontrolled extra movement particularly in the arms, hands and feet, and around the mouth).
Ataxic CP (or ataxia)
This is the least common type. Children with ataxia have unsteady shaky movements or tremor and problems with balance.
Effect of cerebral palsy on the ability to perform tasks
Your therapist or doctor may use a standardised scale to help you and others understand your child's level of functioning.
Read a summary of cerebral palsy classifications
What are some of the other problems for children with cerebral palsy?
As well as movement problems, children with CP often have:
- problems with speech, hearing or vision
- epilepsy
- intellectual or learning difficulties
- perceptual difficulties such as judging the size and shape of objects
- gastro-oesophageal reflux
- orthopaedic problems (with bones, muscles and joints)
- constipation
- feeding and swallowing difficulties
- saliva control problems
- repeated chest infections
- behavioural difficulties and frustration
There is a wide range of intellectual ability in children with CP. Children with a very severe physical disability can have completely normal intelligence.
What causes cerebral palsy?
There are many different causes. A problem with the brain can happen at different stages early in a child's life.
During pregnancy
If the brain does not form or grow properly, or as a result of another problem such as infection.
During labour
If a baby doesn't get enough oxygen during labour, this can result in brain damage. Some babies may have difficulty during labour because of problems with the placenta that happened earlier in pregnancy. Only a small proportion (about 10 percent) of CP results from problems in labour.
Children born extremely prematurely are at greater risk of developing CP.
Early in life
Some conditions early in life can lead to brain damage. These include severe infections such as meningitis, bleeding into part of the brain (a stroke) or a head injury.
Unknown cause
In some children, despite a careful review and various tests, the cause of CP remains unknown. With advances in knowledge and technology, doctors and scientists are identifying more causes.
How is cerebral palsy managed?
Managing CP focuses on the problems of muscle control and movement, and the treatment of other health issues. Empowering, supporting and educating families is the most important part of care. A range of health professionals may be involved in caring for your child. They will talk with you about ways to help your child.
Speech and language therapy
Speech and language therapists help with communication problems and provide help with eating, drinking or saliva problems.
Physiotherapy and occupational therapy
Physiotherapists and occupational therapists encourage development of motor function and motor control and work to limit complications (such as contractures).
Splints (orthoses)
Your child might need these to help with walking, standing and hand function.
Equipment and housing alterations
Your therapist may talk with you about equipment to help your child take part in everyday family activities and childhood tasks. Equipment can include:
- mobility equipment - walking frames, wheelchairs
- adaptive equipment - bath seats to help with safe bathing
- changes to homes and educational buildings so your child can access them
Medical and surgical treatments
- botulinum toxin A (Botox®) injections to relax tight muscles
- oral medicines including baclofen and diazepam
- orthopaedic surgery, such as soft tissue surgery to release tight muscles, or bony surgery to realign bones and joints
What other things do I need to consider for my child with cerebral palsy?
Nutrition
It is important that children with CP receive adequate nutrition. This may involve help from a dietitian, speech language therapist, occupational therapist or the child's paediatrician. Some children need to have their feeding by mouth supplemented with tube feeding.
Hearing and vision
It is important to check your child's hearing and vision.
Epilepsy
Children who also have epilepsy may need to take medicine to control epilepsy.
Educational support services
Children with CP have the same rights to education as all other children. All children have a right to education and to enrol at their local mainstream school or early childhood centre.
Your child will benefit from accessing educational support services in their preschool years as a foundation for future learning.
Children with CP are all different. The level of support they will need in an educational setting will vary. Physical disabilities and learning difficulties can both create significant barriers for children with CP in accessing education.
Some children manage well in a mainstream environment with no support. Other children will need one on one support or significant changes to the curriculum to support both their physical and learning needs. Some children will need support from physiotherapists, occupational therapists, and speech language therapists in school. These professionals will work closely with families and schools to make sure your child's educational needs are met.
You may choose to enrol your child in your local mainstream school or in a specialist school. Specialist schools have specialised teaching and therapy staff who work to deliver adapted curriculum programmes.
What other treatments are there for children with cerebral palsy?
Intrathecal baclofen (ITB)
Children receive this medicine into the space around the spinal cord by a continuous pump. This procedure is not usually available in New Zealand.
Selective dorsal rhizotomy (SDR)
This procedure to treat spasticity involves cutting spinal nerve rootlets. It is appropriate for carefully selected children with CP. It is not available in New Zealand. Parents considering SDR for their child should talk to their paediatrician. The paediatrician may discuss this with a paediatric rehabilitation specialist.
Read about selective dorsal rhizotomy (SDR)
What about complementary and alternative therapy and treatment approaches in cerebral palsy?
Some parents want to look at complementary and alternative treatment approaches.
Read advice about complementary and alternative medicine
If you are considering stem cell therapy or hyperbaric oxygen therapy for your child with CP, please read some information about these.
Read about hyperbaric oxygen therapy
What disability support is available for my child with cerebral palsy?
You can read information about coping with a diagnosis, early intervention, financial support, needs assessment and special education.
See the disability support section of this website
Watch videos and listen to the voices of the Cerebral Palsy Youth Alliance
Acknowledgements
This material has been adapted by the Paediatric Society of New Zealand from:
- Cerebral palsy: An overview. Royal Children's Hospital (RCH). Melbourne. https://www.rch.org.au/kidsinfo/fact_sheets/Cerebral_Palsy_an_overview/ [Accessed 17/12/2020]
