Listing Of NZ Information, Support & Resources on Autism Spectrum Disorder
Listing Of NZ Information, Support & Resources on Autism Spectrum Disorder
A listing of New Zealand organisations, resources and support available for parents, family and whānau of children and young people with autism spectrum disorder.
Diagnosis of ASD and soon after
Diagnostic assessment for ASD in NZ: What to expect (Altogether Autism)
The diagnosis of autism spectrum disorder (ASD) in children and young people is important for several reasons. Diagnosis allows access to appropriate resources, support and assistance. More importantly, it aids understanding of the child by those who live with them, teach them and interact with them in their everyday lives. It also enables families to plan for a future that may be somewhat different to the one they expected for their child and for themselves.
About autism (Parent to Parent)
A 44-page booklet (PDF, 6.35MB) for those with children who have recently had a diagnosis of ASD. Sections include: About ASD; What it looks like; The senses and ASD; Common difficulties; Strengths and abilities; Causes and prevalence; Diagnosis; Disclosing the diagnosis; Where to from here? (NASC); Strategies and interventions; Positive behaviour support and techniques; Alternative and augmentative communication tools; Strategies at home.
Whenever you receive news that your child has special needs, it can be distressing and can lead you and your family to experience a range of emotions. You may feel shock, anger, denial, fear, guilt, sadness, and helplessness. This is normal. The future can be unknown and planning ahead is therefore very difficult. Remember, there are services to help when you want or need help.
When your child is diagnosed with a chronic illness or disability, coping is an ongoing process. Everybody copes in a different way. Seek support when you need it.
Advice to parents of newly diagnosed autistic children (Altogether Autism)
Many parents, when their child is newly diagnosed as autistic, or when they first begin to suspect it, feel stunned and overwhelmed. Penni Winter is an adult on the spectrum and offers her advice.
ASD support groups
Other support and assistance for your child with ASD
Exploring Autism (Healthcare New Zealand)
Exploring Autism is a programme for parents, caregivers, families and whānau of children with a recent diagnosis of autism. It's for children from 0-9 years (up to their 10th birthday). It's free and available throughout New Zealand. Families can self-refer into this programme through the HealthCare New Zealand website or by calling 0800 605 001 and asking one of the team to complete the referral for them. See:
- Exploring Autism - for children aged 0-5 years with a recent diagnosis of autism (PDF, 117KB)
- Exploring Autism - for children aged 6-9 years with a recent diagnosis of autism (PDF, 131KB)
- Exploring Autism - referral form
Needs Assessment Service Coordination (NASC) (KidsHealth)
If your child has ASD, a needs assessment is the first step towards identifying what needs your child may have and what outcomes you want from the process. Service coordination is the process of working with you to explore how best to organise the support and services you need to help your child to be as independent as possible. Support to meet your child's needs may come from families and friends, community agencies and resources, or from government-funded services.
Different kinds of financial support may be available. Talk to your health professional, social worker, or NASC (Needs Assessment Service Coordination) Service about which allowances you may be able to receive.
ASD by age and stage
Autism in early childhood (Altogether Autism)
All parents of young children want a happy and healthy child with every opportunity to reach their full potential. In this life stage, Altogether Autism has articles from family/whānau and professionals about early signs of autism, getting a diagnosis and what to do next. There is information about the supports and services available for young children on the autism spectrum, the benefits of early intervention and how to plan for transition to primary school.
Autism in primary school aged children (Altogether Autism)
The early years in school can lay the foundation for future success. In this life stage, Altogether Autism has articles about successfully managing change and accessing education supports to give children on the autism spectrum the best chance to thrive. There's also information from parents and professionals about tackling tough issues like managing behaviour, anxiety, sensory sensitivities and working with children's strengths.
Autism in teenagers (Altogether Autism)
All teenagers experience change but for autistic teens this is often particularly challenging. At school there's the academic demands, relationships with other teenagers can be complex and there is the constant pressure to think about the future. In this life stage, Altogether Autism has articles and lived experience stories dealing with these issues.
ASD and language
Language opportunities at home (Altogether Autism)
Young children on the autism spectrum may face challenges using and responding to spoken language, writes speech and language therapist Estelle Pretorius. You can support your child to learn that language can be fun and exciting, especially when it involves activities that they love. You will also discover that everyday activities and routines can provide many language opportunities for your child.
Speech and language (KidsHealth)
Information about typical communication development in young children and ideas for supporting them. You'll also find suggestions about what to do if you are worried about your child's communication development.
Living with a sibling with a disability (Parent to Parent)
Watch a 2 part video series where siblings from around New Zealand tell their stories of living with a family member with a disability. Find out about sibling support groups.
ASD, education and learning support
Learning Support: What is it? (KidsHealth)
Your child may need extra support if they have needs that are affecting their learning or participation in everyday life.
Learning Support before your child goes to school (KidsHealth)
If your child needs extra support for learning and development, there are qualified, experienced people in early intervention services who can work with you. This support is available from birth through to when your child starts school.
Learning Support when your child's at school (KidsHealth)
Most children with additional learning needs receive support from their school. But if teachers decide your child needs extra learning support, the Ministry of Education's Learning Support team can help. Staff at your child's school or early childhood education centre will coordinate extra services.
ASD - a resource for educators (TKI - Ministry of Education)
This resource is for teachers - to give them an introduction to autism spectrum disorder and how it might affect a student in any classroom or school setting. It aims to give a taste of what it might be like to stand in the shoes of a student with ASD and some guidelines on how to incorporate goals for students within The New Zealand Curriculum. Parents may also find it useful.
Supporting children and young people with ASD (Ministry of Education)
Providing the right support for students with ASD can significantly change their learning outcomes and their relationships. The Ministry of Education provides advice on teaching students with ASD and links to other supporting resources and organisations.
Education programmes (Autism NZ)
Autism NZ has a number of externally evaluated, New Zealand based education programmes for families (and professionals). The programmes are delivered by facilitators who are professionals working in the field of autism or parents who have lived experience, with consultation from autistic adults.
This page last reviewed 15 March 2021.
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